How Partnership Works | Patient Is Partner 1

THE COMPLETE LIFECYCLE

Question & priorities

Lived expertise belongs at every decision point. Not brought in late to react, but present early enough to shape the work—and supported long enough to help the work matter.

Design & governance

Co-write protocols and grants, choose meaningful outcomes, reduce burden, and share decision-making authority.

Conduct & meaning

Improve recruitment and communication, interpret findings through lived expertise, and keep participant wellbeing visible.

Dissemination & implementation

Co-create new ways to share results, translate evidence into action, and help shape the next research questions.

Careful, Kind, Connected Patient Partnership for ALL

This page shows how patient partners and researchers can work together at every stage of the research lifecycle.

View a sample guidebook

Evidence of Impact

Patient-partnered research strengthens relevant and meaningful questions, recruitment, retention, dissemination, implementation, and in the end builds trust in research for everyone.